Saturday, August 29, 2009
LINKS FOR LIFE GOLF CLASSIC
Posted by Robin at 1:41 AM 0 comments
Labels: "Calvin Klein, "Cystic Fibrosis", "Fort Worth", Golf, Texas
Wednesday, August 5, 2009
Mayflowers Mojitos and Me: Giveaway
MOONFLOWERS MOJITOS and ME: through MY CF Journey with GOD blog. Anyway, over at Moonflowers Mojitos and ME, she is having a fun little give away and the picture to the left is some really cute cocktail napkins that she is giving away along with several other goodies. So stop by and say hi, and please let her know that Wolfhuntress2002 (Robin Inge) sent you please. HURRY!!!!! DEADLINE IS AUGUST 7
Posted by Robin at 9:18 PM 0 comments
Labels: "MOONFLOWERS AND MOJITOS", GIVEAWAY
Thursday, July 16, 2009
MANDATORY SCREENING FOR TEXAS NEWBORNS
Good Morning,
I am so excited to share this news. Congress has passes Legislation that will require the state of Texas to start screening all newborns for CF. For those of you reading that dont know what CF stand's for.... ( aka Cystic Fibrosis). That is a huge accomplishment. Now all 50 states will require the screening. While this is a big step for CF, we still need more. Due to the economy this past year, our goal for the Great Strides Walk was short of our expected goal. So money is still needed to help get those treatments and cures found to increase the hopes for a better life for our CF children. Please stop by and make a donation no matter how small it is. Even a dollar can make a difference if everyone donated a $1.00
Just think each day we spend $4.00 on a cup of coffee at starbucks, or $9.00 for lunch out, $50.00 on a carton on cigarets. If we would stop and take the time to remember that this small sacrifice could help find a cure and give these children the hope for life wouldn't it be worth it.
Posted by Robin at 7:48 AM 0 comments
Labels: "NewBorn Screening", "Texas Legislation", Cure, Cystic Fibrosis
Friday, June 12, 2009
Help me Find a Cure
Have you ever been had a week where nothing goes right and nothing seems to fix it? Ever had a day where all you do is complain? Well, I have and today I was brought to my knees and reality struck me right between the eyes. I had emailed my cousin who lives in Pilot Point and when she wrote back she told me that one of her students who had Cystic Fibrosis had lost her fight in May of this year. I think what got me the most was when she said that her friends had went to Houston to visit her in the hospital and they took her Prom Night to her in her hospital room. This was her SENIOR YEAR!!!!
Wow! Why? At 17, she had her whole life ahead of her! Society spends most of their time wrapped up in things that dont matter and we can not take the time to listen when we need to. It breaks my heart to think this family will not be able to see their little girl grow up when maybe we could have tried a little harder, pushed a little more, begged a little deeper!
Well, no more...................... I'm begging that each person who stops here and see's this post realize that our children who have Cystic Fibrosis need's our help and without it can not find a cure for Cystic Fibrosis. Guys, this is real!
I have the pleasure of knowing a very awesome little girl name Raegan. She lights up the world and then some and everyone she comes in contact with loves her dearly. I want more for Raegan and I want her family to be able to watch her grow into a beautiful young woman so that she may accomplish her dreams and goals of being a Veternarian one day. Please take the time to visit Raegan's Walkers donation site and make a donation. The money you donate helps find a cure and hopefully soon.
Raegan's Walkers
Posted by Robin at 11:30 PM 0 comments
Wednesday, June 3, 2009
Texas Rose Round-Up Summer Concert

Texas Rose Round-Up
Featuring
Posted by Robin at 11:39 AM 0 comments
Labels: Charlie Robinson, Cystic Fibrosis, Cystic Fibrosis Foundation, Ft. Worth, Mingus, Randy Rogers Band, Wade Bowen
Thursday, April 16, 2009
Great Strides for Cystic Fibrosis
Posted by Robin at 8:57 PM 0 comments
Labels: Cure, Cystic Fibrosis, Cystic Fibrosis Foundation, Great Strides, Oklahoma, Oklahoma City, Sooner Chapter
Monday, March 16, 2009
SPRING BREAK
Good Morning Everyone,
Hope everyone is having a wonderful SPRING BREAK vacation. This past weekend we picked up Raegan, Nonie and Madi came down and so did Aunt Lilly and her granddaughters. Saturday we spent the day taking everyone on a wagon ride and playing outside and then Sunday we cooked out, played with the animals and then took the kids and let loose on the 30 acres. They divided into teams and played hide-&-go-seek. Everyone had a blast. When we got home everyone had dinner and the girls got in the hot tube and wouldn't let the boys play. HA HA! Anyway, will post some pictures later. Have a great SPRING BREAK
Posted by Robin at 7:41 AM 0 comments
Labels: :Spring Break", family, friends, fun, Texas, Vacation



