tag:blogger.com,1999:blog-86536922425235152822024-02-07T22:00:24.295-08:00Where there is HOPE, there is LIFEmake a stand and make CF (Cystic Fibrosis) stand for CURE FOUND!Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-8653692242523515282.post-1419309507303329342010-04-23T16:59:00.000-07:002010-04-23T16:59:20.402-07:00Great Strides for Cystic Fibrosis -Oklahoma City, May 8th, 2010<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhS36poDwM8JAVK81GbjT3nXl6G3lRBwnKoiPgIci7MruXL5ShWKkdTFTS64NgYJIqFc6e4o3UKECFeZv2EAli-hoJqARFlv8SF3IyydCPJqNNeR-HDegC2upZL4B_oRsdEORUufLTwF3QG/s1600/GS-Downloadable-Button.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhS36poDwM8JAVK81GbjT3nXl6G3lRBwnKoiPgIci7MruXL5ShWKkdTFTS64NgYJIqFc6e4o3UKECFeZv2EAli-hoJqARFlv8SF3IyydCPJqNNeR-HDegC2upZL4B_oRsdEORUufLTwF3QG/s320/GS-Downloadable-Button.jpg" tt="true" /></a></div><br />
The <a href="http://www.cff.org/great_strides">Great Strides</a> for <a href="http://www.cff.org/">Cystic Fibrosis</a> Walk is rapidly appoarching. The walk will be held on May 8th in Oklahoma City at the Star's and Stripes Park. <br />
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For those of you who might be stopping by for the very first time, I would like for you to take a moment to read through our blog and see why "Cystic Fibrosis" is important to our family and why it is even more important for us to help find a "CURE". <br />
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Without the help from friends and family the foundation would not be able to do the work they do. Through events like the Great Strides and the Breath of Life Gala, we help raise much needed funds that will be used to hopefully one day find a cure and give new life to those who live with Cystic Fibrosis.<br />
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Please help us make a difference by stopping by <a href="http://www.cff.org/great_strides/robininge">Raegan's Walkers</a> and making a donation. <br />
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A little about Raegan....<br />
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I have know Raegan for three years now and let me tell you, she has truly touched my life in ways that I can not describe. However, she truly gives new meaning to the phrase "I THINK I CAN"! and keeps me going. Nothing get's in her way and she never stops doing..... <br />
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Please help us make a difference in her life and give her the gift of life!<br />
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To make a donation please visit <a href="http://www.cff.org/great_strides/robininge">Raegan's Walkers</a> CF secure webpage. Your Donations go directly to the Cystic Fibrosis Foundation.<br />
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<div style="text-align: center;"><strong><span style="color: #351c75; font-size: x-large;">"where there is HOPE, there is LIFE"</span></strong></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-70175749847823682752010-02-18T00:01:00.000-08:002010-02-18T00:01:00.224-08:00HAPPY BIRTHDAY RAEGAN<div style="text-align: center;"><strong><span style="font-size: x-large;">HAPPY BIRTHDAY RAEGAN</span></strong></div><div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgo0hyphenhyphen3Jjadtrhyphenhyphenou-Iq7EorvRV2y6Fscc9PeuKc44eUgSs7N4cOQl5lYZRTAikpWl0dryyxv8KgaHYu7G4CVAF8v2Q0fmAdqXdP1-jgjd8WG9jAnCJdZNfwQpaCamefGUjnCTQ0RPczpFu/s1600-h/PaintsnPasture.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" ct="true" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgo0hyphenhyphen3Jjadtrhyphenhyphenou-Iq7EorvRV2y6Fscc9PeuKc44eUgSs7N4cOQl5lYZRTAikpWl0dryyxv8KgaHYu7G4CVAF8v2Q0fmAdqXdP1-jgjd8WG9jAnCJdZNfwQpaCamefGUjnCTQ0RPczpFu/s320/PaintsnPasture.jpg" /></a></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-69368328578155572212010-02-07T07:08:00.000-08:002010-02-07T07:08:32.194-08:00Great Strides 2010 @ Stars and Stripes Park in Oklahoma CityPlease take a moment to watch the video and learn a little more about Cystic Fibrosis. Our team is gearing up to start our 2010 Great Strides Fundraiser for the Sooner Chapter of the Cystic Fibrosis Foundation in Oklahoma City. The annual walk will be held on May 8th at the Stars and Strips Park at Hefner.<br />
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<iframe frameborder="0" height="300" marginheight="0" marginwidth="0" scrolling="no" src="http://maps.google.com/maps?oe=utf8&ie=UTF8&q=stars+and+strips+park+oklahoma+city&fb=1&gl=us&hq=stars+and+strips+park&hnear=oklahoma+city&hl=en&view=map&cid=4955054703386507417&ved=0CBcQpQY&ei=-EtsS4DuMZDwNNHH9eUE&ll=35.550385,-97.58194&spn=0.041899,0.051498&z=13&iwloc=A&output=embed" width="300"></iframe></div><br />
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<small><a href="http://maps.google.com/maps?oe=utf8&ie=UTF8&q=stars+and+strips+park+oklahoma+city&fb=1&gl=us&hq=stars+and+strips+park&hnear=oklahoma+city&hl=en&view=map&cid=4955054703386507417&ved=0CBcQpQY&ei=-EtsS4DuMZDwNNHH9eUE&ll=35.550385,-97.58194&spn=0.041899,0.051498&z=13&iwloc=A&source=embed" style="color: blue; text-align: left;">View Larger Map</a></small><br />
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<small><span style="font-size: small;">If you would like to help by making a donation please visit us at </span><a href="http://www.cff.org/great_strides/robininge"><span style="font-size: small;">Great Strides</span></a><span style="font-size: small;"> to make a donation or to join our fight. If you would like more information please </span><a href="mailto:Raegans.walkers@yahoo.com"><span style="font-size: small;">email us</span></a><span style="font-size: small;">.</span> </small><br />
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<div style="text-align: center;"><small><strong><span style="color: #351c75; font-size: x-large;">"where there is HOPE, there is LIFE"</span></strong></small></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-23601965471425402672010-01-30T06:38:00.000-08:002010-01-30T06:38:07.380-08:00SAVE THE DATE<div style="text-align: center;"><strong>Your all invited to join Raegan's Walkers for the Annual Great Strides Walk </strong></div><br />
<strong>Walk Site:</strong> <em>2010 Oklahoma City - Stars and Stripes Park at Lake Hefner</em> <br />
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<strong>Date:</strong> <em>May 8, 2010</em> <br />
<strong>Time:</strong> <em>08:30 AM</em> <br />
<strong>Chapter:</strong> <em>Sooner Chapter -- Oklahoma City Office</em> <br />
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Alright! So we are in an economic crunch. Everyone is feeling the tightning of their belt and having to make cut-backs. However, CF don't adhear to the cut-backs, listen to the news, adhere to a budget or any of those daily evils we live by. <br />
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Therefore, Raegan's Walkers is gearing up for 2010! Our Great Strides Walk in Oklahoma City is 3 months away and we need your help to find a cure for CF. So, lets band together to make a difference this year and help find a cure NOW! Our loved one's need our help. Without it our wonderful team of doctors and specialist that spend countless hours trying to find a cure there would be no hope. However, because of their dedication and your support, they have been able to extend the life of our loved ones to 36 years old. Now, for most of you reading this your probably thinking how is that so great. Well, before 2006, the life expectancy of a CF patient was barley 18. <br />
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With the help of family, friends and volunteers we have been able to put various treatments in the <a href="http://www.cff.org/research/DrugDevelopmentPipeline/">Drug Pipeline</a> that could help extend the life of a patient or even CURE CF! Without it, all of this stops......... So please join Raegan's Walkers in 2010 and help us find a cure for CF.<br />
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<div style="text-align: center;"><strong><em><span style="font-size: large;">"where there is HOPE, there is LIFE"</span></em></strong></div><div style="text-align: center;"><em>"making a difference one step at a time"</em></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-5128045727156407342009-10-01T10:45:00.000-07:002009-10-01T10:45:58.046-07:00Research Milestones1938 Dorothy Andersen, M.D. writes the first comprehensive medical report on cystic fibrosis (CF). <br />
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1953 During a heat wave in New York City, Dr. Paul di Sant’Agnese and others connect the extra loss of salt by people with CF to the disease's underlying problem. <br />
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1955 The Cystic Fibrosis Foundation becomes incorporated as the National CF Research Foundation and awards the first research grants to Drs. di Sant’Agnese, Andersen and Shwachman. <br />
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1961 The Cystic Fibrosis Foundation-accredited care center program begins with two centers being established. <br />
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1962 The CF predicted median survival age is 10 years. <br />
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1962 A total of 30 Cystic Fibrosis Foundation-accredited care centers are now in operation. <br />
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1964 To investigate CF at the cellular level and find answers about this complex disease, the Cystic Fibrosis Foundation establishes the first basic science committee. <br />
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1966 The Cystic Fibrosis Foundation launches a patient data registry that includes the history of patients seen at CF Foundation-accredited care centers. <br />
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1978 The number of Cystic Fibrosis Foundation-accredited care centers totals more than 100. <br />
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1980 The Cystic Fibrosis Foundation creates the Research Development Program, a network of research centers at leading universities and medical schools nationwide. <br />
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1988 The Cystic Fibrosis Foundation launches the Cystic Fibrosis Services Pharmacy. <br />
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1989 A team of Cystic Fibrosis Foundation-supportes scientists discovers the defective CF gene and its protein product (CFTR) thus opening the door to understanding the disease at its most basic level. <br />
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1990 CF researchers achieve “proof of concept” that gene therapy (in the lab dish) is possible. <br />
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1993 Landmark gene therapy trial begins in people with CF. <br />
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1994 The Food and Drug Administration (FDA) approves Pulmozyme, which is proven to thin the tenacious, sticky mucus in the lungs - and is the first drug developed specifically for CF. The time taken to develop Pulmozyme is less than half of the industry average. <br />
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1997 The Cystic Fibrosis Foundation establishes the Therapeutics Development Program. <br />
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1997 The FDA approves TOBI, the first aerosolized antibiotic designed for CF, which is proven to reduce hospital stays and improve lung function. <br />
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1998 Specialized clinical research centers are designated as the Cystic Fibrosis Foundation’s Therapeutics Development Network. <br />
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2000 Cystic Fibrosis Foundation Therapeutics, nonprofit research affiliate of the CF Foundation was established to govern drug discovery and development efforts. <br />
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2000 Scientists supported by the Cystic Fibrosis Foundation map the entire genetic structure of the most common cause of CF lung infections-the Pseudomonas aeruginosa bacterium. Researchers can identify the function of specific genes and find ways (drugs) to turn off the bad ones. <br />
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2002 A Cystic Fibrosis Foundation Therapeutics-supported study shows azithromycin improves CF lung health. <br />
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2003 Cystic Fibrosis Foundation Therapeutics-supported scientists at Structural GenomiX, Inc. determine the 3-dimensional structure of a portion of the CFTR protein, opening the door to more drug discovery opportunities. <br />
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2004 Cystic Fibrosis Foundation Therapeutics-supported studies in Australia and at the University of North Carolina show that hypertonic saline helps clear CF mucus. It is proven to improve lung function and reduce hospital stays, and becomes a therapeutic option. <br />
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2006 The predicted median age of survival for those with CF increases to 37 years. <br />
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2006 VX-770, a drug in development by Vertex Pharmaceuticals with support from the Cystic Fibrosis Foundation, enters clinical trials. VX-770 is one of the first compounds to attack the root cause of CF, and works at the cellular level to open chloride channels that do not function correctly in people with the disease. <br />
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2007 Vertex Pharmaceuticals selects a second potential drug known as VX-809 for development. Like VX-770, VX-809 addresses the root cause of CF, but it works by helping the defective CF protein move to its proper place in the cell. <br />
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2007 Gilead Sciences, Inc. applies for FDA approval for its inhaled antibiotic therapy, aztreonam lysine, which has been shown to improve respiratory symptoms in CF patients. <br />
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2008 The Foundation and Vertex Pharmaceuticals achieve a “proof of concept,” showing that it is possible to treat the root cause of CF. During Phase 2 studies of VX-770, trial participants, all of whom carry the G551D mutation of CF, show unprecedented improvements in key signs of the disease.<br />
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2008 More than 30 potential therapies are in the Foundation’s drug discovery and development pipeline. The more drugs in the pipeline, the greater the odds of producing successful therapies and a cure for CF.Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-64994715890036086782009-09-14T03:59:00.000-07:002009-09-14T04:04:08.655-07:00BREATH OF LIFE<div align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjXIUx6pKt9lGWVSHstuhk7tEy1-u0-9c2efmmrQRrbB-8A5rutLXAdqgLkxYsP3zQ3AvhlSEHwHARbmBUTAN4AX0xRRGAmHsgdI1A3h9g39YoFo8gbeqfgtLC4yQE0TA_716cUvTQw7Y8/s1600-h/event%2520logo.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 320px; DISPLAY: block; HEIGHT: 180px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5381276048859227362" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjXIUx6pKt9lGWVSHstuhk7tEy1-u0-9c2efmmrQRrbB-8A5rutLXAdqgLkxYsP3zQ3AvhlSEHwHARbmBUTAN4AX0xRRGAmHsgdI1A3h9g39YoFo8gbeqfgtLC4yQE0TA_716cUvTQw7Y8/s320/event%2520logo.jpg" /></a><br /><br /><strong><span style="font-size:130%;">November 13, 2009 </span></strong><br /><strong><span style="font-size:130%;">6:00 pm - ?</span></strong><br /><strong><span style="font-size:130%;">Cowboy and Western Heritage Museum</span></strong><br /><strong><span style="font-size:130%;">1700 NE 63rd St., </span></strong><br /><strong><span style="font-size:130%;">Oklahoma City, OK 73111</span></strong><br /><br />The Breath of Life Gala brings together OKC’s community leaders, friends and family to support the CF Foundation. Guests will enjoy one-of-a-kind entertainment and will have a chance to bid on live and silent auction items from area retailers, artisans and designers.One of the highlights of this event is the Bid for a Cure speech followed by a chance to give a pledge to help find a cure for CF. Please make your plans now to attend this outstanding event.<br /><br />To ask a question or to find out more information, please call (405) 787-0056 or email <a href="mailto:oklahomacity@cff.org">oklahomacity@cff.org</a> for information.<br /><br />If you would like to make a donation on behalf of the Raegan's Walker's Team in honor of someone you know who has CF, please email us at <strong><a href="http://www.blogger.com/Wolfhuntress2002@yahoo.com">Raegan's Walkers<br /></a></strong><br /><br /><br /></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-56615771913609292042009-08-29T01:41:00.000-07:002009-08-29T01:45:56.596-07:00LINKS FOR LIFE GOLF CLASSIC<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhetpYw4WbVBABVtD8_yGCXaZHFoRWon0LWnbexhwty9tIYGLRfQamnp9Gxhyd5tYof22NbHj7wFogoGGPffJNJQoTHVeYp-hRGTuWPyUh-HXFQgn8Vrg2gdNlqej_hU8lxIEDeVomGIOCb/s1600-h/Logo%2520Final2.jpg"><img style="TEXT-ALIGN: center; MARGIN: 0px auto 10px; WIDTH: 204px; DISPLAY: block; HEIGHT: 320px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5375303379009763570" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhetpYw4WbVBABVtD8_yGCXaZHFoRWon0LWnbexhwty9tIYGLRfQamnp9Gxhyd5tYof22NbHj7wFogoGGPffJNJQoTHVeYp-hRGTuWPyUh-HXFQgn8Vrg2gdNlqej_hU8lxIEDeVomGIOCb/s320/Logo%2520Final2.jpg" /></a><br /><div>Hey everyone, there is a Golf Tournament in October that is going to benefit Cystic Fibrosis and would love for everyone to stop out and support us. Every dollar raised is another dollar that will help fund research so we can be one step closer to a CURE! So come by and support our cause....</div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-54878520535961879462009-08-05T21:18:00.000-07:002009-08-05T21:27:36.188-07:00Mayflowers Mojitos and Me: Giveaway<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNIIR-A6pPUUiulNKrCb0EMOGN2rQOodPq0URT3Vyd6U-OOcgesWe3iUEOtZsLLrzYQmVVoCSfPwsZTnEXALHoAEtuKoTHYpU5jIm9l75KUx10qpOz-W9ycvR-n9h17hqdz3H1oTcfoi-t/s1600-h/martini_napkin.jpg"><img id="BLOGGER_PHOTO_ID_5366700895146312226" style="FLOAT: left; MARGIN: 0px 10px 10px 0px; WIDTH: 320px; CURSOR: hand; HEIGHT: 320px" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgNIIR-A6pPUUiulNKrCb0EMOGN2rQOodPq0URT3Vyd6U-OOcgesWe3iUEOtZsLLrzYQmVVoCSfPwsZTnEXALHoAEtuKoTHYpU5jIm9l75KUx10qpOz-W9ycvR-n9h17hqdz3H1oTcfoi-t/s320/martini_napkin.jpg" border="0" /></a><br /><br /><p align="left"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMDj6aqovDd-OpT8A7QkiwXxBI6tgaTQxoOSoMwTeGpqWvNeYrL-da45M7cMX2KvTZ25igNvnhRZPkmSAY4KmG8BPd1fmIDz3rKlphbjcKudvj3qH5D43vTN4ihGBjDLB9mfY6UZBoicF-/s1600-h/martini_napkin.jpg"></a></p>Hey Everyone, Now that I dont have a ton of homework to do each night, I can actually start blogging again and stay up late. Tonight while blogging and just kicking back, I happened to run across some really fun blogs. I found this one:<br /><br /><a href="http://moonflowersmojitosandme.blogspot.com/2009/08/giveaway.html">MOONFLOWERS MOJITOS and ME:</a> through <a href="http://cftransplantmiracle.blogspot.com/">MY CF Journey with GOD</a> blog. Anyway, over at Moonflowers Mojitos and ME, she is having a fun little give away and the picture to the left is some really cute cocktail napkins that she is giving away along with several other goodies. So stop by and say hi, and please let her know that Wolfhuntress2002 (Robin Inge) sent you please. HURRY!!!!! DEADLINE IS AUGUST 7Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-42731820972534813692009-07-16T07:48:00.000-07:002009-07-16T07:55:31.957-07:00MANDATORY SCREENING FOR TEXAS NEWBORNSGood Morning,<br /><br />I am so excited to share this news. Congress has passes Legislation that will require the state of Texas to start screening all newborns for CF. For those of you reading that dont know what CF stand's for.... ( aka Cystic Fibrosis). That is a huge accomplishment. Now all 50 states will require the screening. While this is a big step for CF, we still need more. Due to the economy this past year, our goal for the Great Strides Walk was short of our expected goal. So money is still needed to help get those treatments and cures found to increase the hopes for a better life for our CF children. Please stop by and make a donation no matter how small it is. Even a dollar can make a difference if everyone donated a $1.00 <br /><br />Just think each day we spend $4.00 on a cup of coffee at starbucks, or $9.00 for lunch out, $50.00 on a carton on cigarets. If we would stop and take the time to remember that this small sacrifice could help find a cure and give these children the hope for life wouldn't it be worth it. <br /><br /><div align="center"><strong><span style="font-size:180%;">PLEASE HELP US FIND A CURE FOR CYSTIC FIBROSIS!</span></strong></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-2680593734207360832009-06-12T23:30:00.000-07:002009-06-12T23:40:19.232-07:00Help me Find a CureHave you ever been had a week where nothing goes right and nothing seems to fix it? Ever had a day where all you do is complain? Well, I have and today I was brought to my knees and reality struck me right between the eyes. I had emailed my cousin who lives in Pilot Point and when she wrote back she told me that one of her students who had Cystic Fibrosis had lost her fight in May of this year. I think what got me the most was when she said that her friends had went to Houston to visit her in the hospital and they took her Prom Night to her in her hospital room. This was her SENIOR YEAR!!!!<br /><br />Wow! Why? At 17, she had her whole life ahead of her! Society spends most of their time wrapped up in things that dont matter and we can not take the time to listen when we need to. It breaks my heart to think this family will not be able to see their little girl grow up when maybe we could have tried a little harder, pushed a little more, begged a little deeper! <br /><br />Well, no more...................... I'm begging that each person who stops here and see's this post realize that our children who have Cystic Fibrosis need's our help and without it can not find a cure for Cystic Fibrosis. Guys, this is real! <br /><br />I have the pleasure of knowing a very awesome little girl name Raegan. She lights up the world and then some and everyone she comes in contact with loves her dearly. I want more for Raegan and I want her family to be able to watch her grow into a beautiful young woman so that she may accomplish her dreams and goals of being a Veternarian one day. Please take the time to visit Raegan's Walkers donation site and make a donation. The money you donate helps find a cure and hopefully soon. <br /><br /><a href="http://www.blogger.com/www.cff.org/great_strides/robininge">Raegan's Walkers</a><br /><br /><div align="center"><span style="font-size:180%;color:#6600cc;"><strong>"where there is HOPE, there is LIFE"</strong></span></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-87211912434740023202009-06-03T11:39:00.000-07:002009-06-03T11:49:06.519-07:00Texas Rose Round-Up Summer Concert<div align="center"><img class="gl_bold" alt="Bold" src="http://www.blogger.com/img/blank.gif" border="0" /></div><p align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4_IRgbZ4pmVbdwHUN88AAze3dkhXozZMmIeHngXxP3_5sTf4p6M2pTPiEn-dPdlp_yrRFx_6bEckY2Ze3XVqHhv-zDQx657PKX3KcOJws3WBj6wsOvEVK17m68gURrcCBDloaQOPVbnAt/s1600-h/14.jpg"><img id="BLOGGER_PHOTO_ID_5343172876844380418" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 320px; CURSOR: hand; HEIGHT: 316px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4_IRgbZ4pmVbdwHUN88AAze3dkhXozZMmIeHngXxP3_5sTf4p6M2pTPiEn-dPdlp_yrRFx_6bEckY2Ze3XVqHhv-zDQx657PKX3KcOJws3WBj6wsOvEVK17m68gURrcCBDloaQOPVbnAt/s320/14.jpg" border="0" /></a><br /><strong><span style="font-size:130%;">The Inaugural</span></strong></p><p align="center"><span style="font-size:130%;"> </span><span style="font-size:180%;"><strong>Texas Rose Round-Up </strong></span></p><div align="center"><span style="font-size:130%;"><strong>Summer Concert</strong></span></div><div align="center"><span style="font-size:130%;"></span> </div><div align="center"><strong>At RR Mingus Lake Ranch</strong></div><div align="center"><strong></strong> </div><div align="center"> <span style="font-size:130%;"><strong>Mingus, Texas</strong></span></div><div align="center"><strong><span style="font-size:130%;"></span></strong> </div><div align="center"><em><strong><span style="font-size:130%;">Benefiting the Cystic Fibrosis Foundation</span></strong></em></div><div align="center"><em>Saturday, June 20, 2009 3:00 - ?</em></div><div align="center"><em></em> </div><div align="center"><em>Allan Meyer – Chair</em></div><div align="center"><strong> Committee</strong> </div><div align="center"><em>John Giordano, Eric Walsh, Rick Wegman, Jon Bonnell</em></div><div align="center"><em> </em></div><div align="center"><em><strong><span style="font-size:180%;">Headliner</span></strong></em></div><div align="center"><em><span style="font-size:130%;"><strong>The Randy Rogers Band</strong></span></em><br /><br /><strong><span style="font-size:130%;">Featuring</span></strong></div><div align="center"> <em><strong><span style="font-size:130%;">Charlie Robison & Wade Bowen</span></strong></em><br /></div><div align="center"> </div><div align="left">GROUPIE SPONSOR - UNLIMITED NUMBER AVAILABLE $250 ($219 tax deductible)</div><div align="left"> 1- Guest Pass Transportation to and from the Event on a Coach America Luxury Bus Seating Within the Ropes - BYOLCOB - Bring Your Own Lawn Chair or Blanket Food and Beverage 1 Texas Rose Round-Up T-Shirts 1 Texas Rose Round-Up Koozies Recognition in All Printed Event Materials General Admission w/Transportation $150 ($119 tax deductible) Transportation to and from the event Lawn Seating - BYOLCOB - Bring Your Own Lawn Chair or Blanket Feel Free to Bring in Your Coolers Loaded with Food and Beverage of Your Choice or You May Purchase Food and Non-Alcoholic Beverages During the Event. General Admission w/o Transportation $100 ($69 tax deductible) Lawn Seating - BYOLCOB - Bring Your Own Lawn Chair or Blanket Feel Free to Bring in Your Coolers Loaded with Food and Beverage of Your Choice or You May Purchase Food and Non-Alcoholic Beverages During the Event General Admission w/o Transportation $100 ($69 tax deductible)Lawn Seating - BYOLCOB - Bring Your Own Lawn Chair or BlanketFeel Free to Bring in Your Coolers Loaded with Food and Beverage of Your Choice or You May Purchase Food and Non-Alcoholic Beverages During the EventFood and Beverage provided by Jon Bonnell</div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-57219817651346780122009-04-16T20:57:00.000-07:002009-04-16T21:16:45.405-07:00Great Strides for Cystic Fibrosis<div align="center"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7aMYOiYsEDsZZiXJtjQxAhvNh5aOs-bsdXY3UBbME95R0a5CyHH5sZ8qsKk7Wz8jOzP1k4RGXHQCTnDIecoapc-erBfJ1noM4Z7OdfA_kJfeCUE7aa4FBbMIjN5EfFaGHWO5ObTCsFjro/s1600-h/Tree+Hugger.jpg"><img id="BLOGGER_PHOTO_ID_5325506684992891058" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 240px; CURSOR: hand; HEIGHT: 320px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7aMYOiYsEDsZZiXJtjQxAhvNh5aOs-bsdXY3UBbME95R0a5CyHH5sZ8qsKk7Wz8jOzP1k4RGXHQCTnDIecoapc-erBfJ1noM4Z7OdfA_kJfeCUE7aa4FBbMIjN5EfFaGHWO5ObTCsFjro/s320/Tree+Hugger.jpg" border="0" /></a><strong><span style="font-size:180%;color:#6600cc;"> HELP SUPPORT CYSTIC FIBROSIS</span></strong> </div><div align="center">GREAT STRIDES</div><div align="center"><a href="http://www.cff.org/Chapters/okc/">OKLAHOMA CITY, OK</a></div><div align="center">May 10, 2009</div><div align="center"> </div><div align="left">I would love if each and every person that stop's by would take the time to visit the <a href="http://www.cff.org/">Cystic Fibrosis</a> so that they may learn a little more about what Raegan lives with each day. Our hope is that we can raise enough money and make CF stand for <strong>"CURE FOUND".</strong></div><div align="left"><strong></strong> </div><div align="left">Our family has put together "RAEGAN'S WALKERS" to help support the Cystic Fibrosis Foundation and their battle to find a cure for Raegan and all the other CF patients. Without us, there would be no treatments and the life expectancy would not be what it is today. </div><div align="left"> </div><div align="left">We hope you will visit our DONATION page and help us fight this fight! </div><div align="left"> </div><div align="left">To donate <a href="http://www.cff.org/great_strides/robininge">click here</a></div><div align="left"> </div><div align="center"><span style="font-size:180%;color:#6600cc;">"where there is HOPE, there is LIFE"</span></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-3239853957128454362009-03-16T07:41:00.000-07:002009-03-16T07:45:16.154-07:00SPRING BREAKGood Morning Everyone,<br /><br />Hope everyone is having a wonderful SPRING BREAK vacation. This past weekend we picked up Raegan, Nonie and Madi came down and so did Aunt Lilly and her granddaughters. Saturday we spent the day taking everyone on a wagon ride and playing outside and then Sunday we cooked out, played with the animals and then took the kids and let loose on the 30 acres. They divided into teams and played hide-&-go-seek. Everyone had a blast. When we got home everyone had dinner and the girls got in the hot tube and wouldn't let the boys play. HA HA! Anyway, will post some pictures later. Have a great SPRING BREAKRobinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-45215791280055124702009-03-12T18:54:00.001-07:002009-03-12T18:54:44.355-07:00Cystic Fibrosis<div xmlns='http://www.w3.org/1999/xhtml'><p><object height='350' width='425'><param value='http://youtube.com/v/-NMm8qLcOII' name='movie'/><embed height='350' width='425' type='application/x-shockwave-flash' src='http://youtube.com/v/-NMm8qLcOII'/></object></p><p>"where there is HOPE, there is LIFE"</p></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-21663970203442124832009-03-10T17:10:00.000-07:002009-03-10T17:15:22.589-07:00CROP OUT CYSTIC FIBROSIS EVENTHi Everyone, Just wanted to let you know that the 1st Annual Crop out CF Event has been postponned. Everyone will be going on Spring Break in the next few weeks and then there are some classes going on the weekend before. So we are going to reschedule the event at a later time. Please stay tuned for more information. However, if you'd like to donate to the Cystic Fibrosis Foundation, please visit the <a href="http://www.cff.org/great_strides/robininge"><strong>Raegan's Walkers</strong> </a>Donation Page.<br /><br />I know that everyone is going though some rough times right now. However, please remember that we are trying to save a life by raising money to help the Foundation get much needed therapies approved by the FDA and hopefully one day a CURE!<br /><br /><div align="center"><strong><span style="font-size:180%;">'"where there is HOPE, there is LIFE"</span></strong></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-87774815654914955352009-02-28T10:11:00.000-08:002009-02-28T10:15:59.774-08:00Spring is Coming....Ok, SPRING is usually a time for new life.... trees blooming, baby calves or colts being born. Something new and fun. I love spring! Everthing starts coming alive again. So I'm asking that each and everyone of you that stop by and visit to please stop by <a href="http://www.cff.org/great_strides/robininge">RAEGANS WALKERS GREAT STRIDES HOME PAGE </a>and make a $1.00 donation. If each of you do this, then we can make SPRING something wonderful. Help us give LIFE to those with CF and hopefully we can help find a cure. <br /><br /><br /><div align="center"><a href="http://cff.org/"><strong><span style="font-size:180%;">"where there is HOPE, there is LIFE"</span></strong></a></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-85247503129092494532009-02-14T09:08:00.000-08:002009-02-14T09:17:55.431-08:00<div align="center"><a href="http://s209.photobucket.com/albums/bb248/magga777/?action=view&current=valentines-05-1024.jpg" target="_blank"><img style="WIDTH: 956px; HEIGHT: 688px" height="721" alt="valentine\'s day" src="http://i209.photobucket.com/albums/bb248/magga777/valentines-05-1024.jpg" width="982" border="0" /></a><br /><br /><span style="color:#6600cc;"><span style="font-family:lucida grande;font-size:180%;">HAPPY VALENTINES</span></span></div><div align="center"><span style="font-size:180%;color:#6600cc;"></span></div><div align="center"><span style="font-size:130%;color:#6600cc;">Well hope everyone is having a Happy Valentines today. For those of you who would like to send Raegan a Valentine.... post here or go to <a href="http://www.cff.org/great_strides/robininge">Raegan's Walker Page</a> and donate a dollar to help support Cystic Fibrosis Foundation and leave a message there Help Raegans Walkers reach our Goal of $3000 this year to help find a CURE!</span></div><div align="center"><span style="font-size:130%;color:#6600cc;"></span></div><div align="center"><span style="font-size:130%;color:#6600cc;">HAVE A GREAT DAY!</span></div><div align="center"><span style="color:#6600cc;"></span></div><div align="center"><span style="color:#6600cc;"></span></div>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-18046751048918183712009-02-09T13:08:00.000-08:002009-02-09T13:14:27.291-08:00Cystic Fibrosis~Great Strides WebsiteHey Everyone,<br /><br />Just wanted everyone to know they are doing maintance and upgrades on the Great Strides and Cystic Fibrosis Web Page. So if you go to donate and it shows an error, please email me and let me know. They should have everything fixed within a day or two.Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-59855989137709510582009-02-05T22:55:00.000-08:002009-02-05T23:27:41.270-08:00Raegan's Hope For Life<embed name="FLVPlayer" pluginspage="http://www.macromedia.com/go/getflashplayer" src="http://www.onetruemedia.com/share_view_player?p=" width="408" height="382" type="application/x-shockwave-flash" quality="high" scale="noscale" wmode="transparent" salign="LT" flashvars="&p=5384fd21409b9692a8ea4e&skin_id=1702&host=http://www.onetruemedia.com"></embed> <div style="PADDING-BOTTOM: 15px; MARGIN: 0px; FONT: 12px/20px verdana,arial,sans-serif; WIDTH: 408px; TEXT-ALIGN: center"><a href="http://www.onetruemedia.com/share_player_link?p=5384fd21409b9692a8ea4e&skin_id=1702&source=emplay" target="_blank"><img style="BORDER-RIGHT: 0px; BORDER-TOP: 0px; BORDER-LEFT: 0px; BORDER-BOTTOM: 0px" src="http://www.onetruemedia.com/share_player_link_image/5384fd21409b9692a8ea4e/1702.gif" width="408" /></a><br /><a style="TEXT-DECORATION: none" href="http://www.onetruemedia.com/landing?&utm_source=emplay&utm_medium=txt1" target="_blank">Make an on-line slide show at <span style="TEXT-DECORATION: underline">www.OneTrueMedia.com</span></a></div><strong>PLEASE MAKE SURE YOU TURN MY PLAYER OFF BEFORE YOU START VIDEO!</strong><br /><p>I know that in our during our busy day we dont make much time for anything other than work and whatever we need to get done before bed...</p><p>However, I want you to take the time and stop to watch this video so you can meet Raegan and know a little about her and Cystic Fibrosis and why we fight this fight. Currently there is no cure for Cystic Fibrosis and without your help there will not be one. We dont have the funds from the large companies like, Cancer and MS. So, the CF Foundation relies on the families and friends of the loved ones who life with this diesease to help raise money. Once you view this video you will quickly see why we love Raegan so very much and why this is important to our family.</p><p>You might thing that you dont have anything but a dollar to give. THAT IS OK! If you send this link to 10 people and they send to ten people and so on..... IT WILL MAKE A DIFFERENCE! So visit our <strong><span style="color:#cc33cc;"><a href="http://www.cff.org/great_strides/robininge">RAEGANS WALKERS</a></span></strong> Great Strides Home page and make a Donation to help save a life.</p><p>Sincerely,</p><p></p><p>Raegan's Walkers</p><p></p>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-1191930830249995022009-02-04T18:26:00.000-08:002009-02-10T18:48:33.670-08:00CROP OUT CYSTIC FIBROSIS EVENT<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoelWXMs853TiAszjBuYfHkv40adWYDCXzIJV3U_ZKU8u4Wf4V3t9QNj4sDXXYqUwnaHObc9UMSTnHmfNTnmFeNI26m3dS_6UWccr8-io2Oz6CR8P75UQ0185_7fYPgMWaZ7r3uC3Zfy1G/s1600-h/Invitation.jpg"><img id="BLOGGER_PHOTO_ID_5299135966855974434" style="DISPLAY: block; MARGIN: 0px auto 10px; WIDTH: 320px; CURSOR: hand; HEIGHT: 214px; TEXT-ALIGN: center" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjoelWXMs853TiAszjBuYfHkv40adWYDCXzIJV3U_ZKU8u4Wf4V3t9QNj4sDXXYqUwnaHObc9UMSTnHmfNTnmFeNI26m3dS_6UWccr8-io2Oz6CR8P75UQ0185_7fYPgMWaZ7r3uC3Zfy1G/s320/Invitation.jpg" border="0" /></a> Wenona and I will be hostessing the First Annual Crop Out <a href="http://cff.org/"><strong><span style="color:#6600cc;">Cystic Fibrosis</span></strong> </a>Crop in Wichita Falls. <a href="http://www.scrapbooknsuch.com/home.html"><strong><span style="color:#cc0000;">Scrapbook 'N Such</span></strong></a> will be sponsoring the event. 100% of the proceeds from this event will be donated on behalf of Raegan's Walkers to the <span style="color:#3366ff;"><a href="http://cff.org/"><strong>Cystic Fibrosis Foundation</strong> </a></span><span style="color:#330000;">for the Great Strides Annual Fundraising Event that the CF foundation host every year in May just before Mother's Day.</span><br /><br /><p>For tickets or more information, please contact Scrapbook~n~ Such at 940-923-5361 or email Robin. If you would like to participate or donated to the fund please see <a href="http://www.cff.org/great_strides/robininge"><strong><span style="color:#6600cc;">RAEGAN'S WALKERS</span></strong> </a>team page located on the <a href="http://www.cff.org/great_strides/robininge"><strong><span style="color:#3366ff;">CYSTIC FIBROSIS -Great Strides</span></strong></a> web page.<a href="http://www.cff.org/"></p></a><br /><br /><br /><br /><div align="center"><strong><span style="font-size:180%;color:#6600cc;">1st Annual Crop OUT Cystic Fibrosis Crop</span></strong></div><p align="center"><em>4020 Rhea Road, STE 38</em></p><p align="center"><em>Wichita Falls, TX 76308</em></p><p align="center"><em><span style="color:#ff99ff;"><strong>940-923-5361</strong></span></em></p><p align="center"><em>Time: 10:00 am till 8:00 pm</em></p><p align="center"><em>Cost: $40.00 Donation</em></p><p align="center"><strong><span style="color:#ffccff;"><span style="color:#6633ff;">Donation includes: t-shirt, (1) make-n-take, food, door prizes and lots and lots of</span> fun.</span></strong></p>Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0tag:blogger.com,1999:blog-8653692242523515282.post-37972551192859446832008-12-18T19:16:00.001-08:002008-12-18T19:19:40.611-08:00What is Cystic Fibrosis?<object width="425" height="344"><param name="movie" value="http://www.youtube.com/v/6v5o9AzjH6Q&hl=en&fs=1"></param><param name="allowFullScreen" value="true"></param><param name="allowscriptaccess" value="always"></param><embed src="http://www.youtube.com/v/6v5o9AzjH6Q&hl=en&fs=1" type="application/x-shockwave-flash" allowscriptaccess="always" allowfullscreen="true" width="425" height="344"></embed></object><br /><br />Raegans Walkers are dedicated to helping find a cure and would like for each person who who visits to take a minute to view this video. Raegans Walkers walk in hopes that we can help find a cure for CF and give our Raegan a longer, healther life. Please help us, help Raegan and the other 300,000 individuals so that they may enjoy life CF FREE.<br /><br />Please remember, Where there is HOPE, there is LIFE!Robinhttp://www.blogger.com/profile/01023929223545212603noreply@blogger.com0